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Connor just walked his longest distance ever!
Tuesday Connor walked his longest distance ever independently. He’s been getting better and better at walking with the emotional support of holding a hand or even just a finger, and sometimes even just...
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Seizure Hunter — The Elusive Prey
Seizures are really obvious. I couldn’t possibly miss one. We’ve all seen them on television: the fall to the floor, the violent thrashing, maybe some foaming at the mouth. Therefore, it’s really easy...
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Sleeping With Scorpions
It was a quiet, relaxing, long weekend in the North Georgia mountains minus the morning we woke up with a couple of surprise visitors in the room. Chris was the first to drag himself out of bed and...
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Helpful contact information for healthcare premium assistance programs.
Due to Connor’s diagnosis of tuberous sclerosis complex, he qualified for Katie Beckett Medicaid (known as TEFRA in some states). He is eligible for that program based solely on his medical condition....
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Tardy thoughts on the Superbowl, dadvertising, and that stupid fire dress.
Let’s start with the game. It gets my standard review. Didn’t care. Didn’t watch it. Well, except for that fight at the end. That was kind of entertaining. I hate football. YES! I SAID IT! I live in...
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Pesky Questionnaire Problems for Special Needs
Connor has aged out of early intervention and will go into the school system where he can attend a special needs pre-school. You know what that means! Paperwork! Like this transition isn’t hard enough....
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Tuberous Sclerosis Complex Awareness Month – Joy
Third Annual Blogging for TSC Awareness Month Day 1 by guest blogger Ryan Kennedy (Woodward, Iowa) Joy Who knew what this journey had in store? I was going to be a father again. My wife held a child...
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Unconditional Love
Day 3 of Blogging for TSC Awareness Month by guest blogger Caroline Clyborne Ramirez (Austin, Texas) Since our son, Leif, first learned to talk, we’ve been drilling him on a basic call and response:...
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He is our superhero.
Day 8 of Guest Blogging for TSC Awareness by guest blogger Melissa Courtright (Caldwell, Idaho) We have two children. An older daughter Robin who is 11 (non TS), and Remy, who just turned three. He...
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Are You Sick? Don’t Put My Kid in the Hospital.
I’m not really sure why I’m writing this. The people who actually need to read it either won’t…or will dismiss it immediately after they do. But I’m going to say it anyway because your family, job and...
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